Decisions, decisions about how to move forward in my care with this pregnancy. I truly resent my cervix, not surprisingly. It's really holding me back, I can't even drive long distances without being in pain and considering the baby still has lots of growing to do, it will get worse before it gets better. I really wish I could locate more supportive providers, I know they're out there but getting to them would be the problem. I hope those who have a normal cervix appreciate it because this really sucks!
Sigh* How can you reason with providers that don't really have a supportive attitude to begin with. It seems they just do as little as possible with care and they can't wait to clock out. I doubt they would tolerate that kind of care for themselves or their loved ones, but we're supposed to be grateful for half-assed care?!? I can't wait to make it to hopefully make it to 35 weeks do I can get back to a cars provider that I do feel supported by, my regular OB.
Friday, October 26, 2012
Thursday, October 25, 2012
10-25-12
I'm really blessed to have an amazing support group, and not for IC but for the scar type on my uterus from my c-section. Funny how that worked out, even though it's nice to have a support group for IC, the feeling just isn't the same. I feel more understood in my scar group and I'm really thankful for that. I truly need it now. I've been crying non stop, the horrible nightmares, the lousy pernatologist we have to deal with.. I can't wait to get to the end but at the same time, this is most likely the last baby. I would like to enjoy being pregnant and have it last, but without feeling supported by those who are SUPPOSED to care for you, it's very hard.
I guess this isn't going to really get better until the baby gets here. On the plus side, I feel more hopeful for a planned c-section. I still wonder if maybe I'd be better off trying for a vbac but I'll see what happens.
I guess this isn't going to really get better until the baby gets here. On the plus side, I feel more hopeful for a planned c-section. I still wonder if maybe I'd be better off trying for a vbac but I'll see what happens.
Sunday, October 14, 2012
10-14-12
The dollar menu was placed almost a week ago. It's physically a lot harder to get around than I thought it would be. Thankfully, my husband has been a great help and scored a great wheelchair. My 5 year old's teachers have been very sweet and understanding and help get him to the car so I don't have to get out and walk. I'm very grateful for that.
Next step is my appointment with my regular OB to discuss options for a planned c-section. At least something should be a positive experience, settling for this lousy cerclage and even worse care providers is bad enough, then they expect me to plan my c-section with them????!!!! Yuck! Even though my husband likes the hospital, I do not want anything to do with that place after week 35. (assuming I make it there) Other people can use "baby steps" in a high risk pregnancy if they want but I don't completely agree with that mind set. Unless you already have a provider you like and trust, finding one takes time. So while I'm able, I'm starting the search.
I also made the decision to not talk about my pregnancy in any IC forums until I feel up to it again. I'm glad everyone was supportive of my feelings and would welcome me back when I was ready. I hope I can get to that point but for now, it's best to find my own way through this. How could anyone else understand when they have game plans and doctors they trust? I just can't relate to anyone, I feel like I've just been set up to fail and go through another loss. That's certainly going to be uplifting to write about for the next few months, it's just better not to talk about it there and find a different support source. I just have to find one...
Saturday, September 29, 2012
9-29-12
I'm so glad I decided to create a blog. I need the freedom to vent without worrying about who I may offend. Not that I would intentionally but I have a right to my own fears that no one will ever truly understand.
Counting to down to cerclage time: The dreaded cerclage that I was hoping to avoid but forced into since it's either that or do nothing. It's pretty much the same thing as doing nothing, I wouldn't be surprised to experience a failure due to my cervix dilating right passed it like it's not even there. Yet OBs left and right say it'll be fine. Of course it will be fine for them, it'll be grand for THEM, they don't have to pick up the pieces of shattered lived when another child is needlessly lost. On to golf games on the weekend and spending time with family like nothing happened. Name a time when a doctor offered to cover the cost of a funeral for their botched and pathetic efforts placing a crappy cerclage? I'll wait..........................
Here's to embracing this piece of shit cerclage on the 8th. I even picked out a name; dollar menu. It's cheap, lazy, pathetically put together and inferior in quality, it even has McDonald in the name. Fits perfectly in my opinion.
Counting to down to cerclage time: The dreaded cerclage that I was hoping to avoid but forced into since it's either that or do nothing. It's pretty much the same thing as doing nothing, I wouldn't be surprised to experience a failure due to my cervix dilating right passed it like it's not even there. Yet OBs left and right say it'll be fine. Of course it will be fine for them, it'll be grand for THEM, they don't have to pick up the pieces of shattered lived when another child is needlessly lost. On to golf games on the weekend and spending time with family like nothing happened. Name a time when a doctor offered to cover the cost of a funeral for their botched and pathetic efforts placing a crappy cerclage? I'll wait..........................
Here's to embracing this piece of shit cerclage on the 8th. I even picked out a name; dollar menu. It's cheap, lazy, pathetically put together and inferior in quality, it even has McDonald in the name. Fits perfectly in my opinion.
Sunday, September 2, 2012
9-2-12
My little blueberry's first picture courtesy of the ER visit for bleeding after Azriel's balloons went up to meet him. Very scary but thankfully all looks okay. It made me realize that I really am wishing my pregnancy away. With all the hopes for a TAC dashed, stressing about not having many options and only looking down the road to November, mentally preparing for a second loss in less than a year.... I'm not enjoying the fact that my baby is here now. I'm pregnant today. I don't want to look back and wish I would have enjoyed my moments. I did with Azriel, and this little one deserves the same. Besides, 7+ weeks and still no MS?! I'm way over due.. So sweetie, starting today it's time to just relish in having you here. Of course I'll never stop fighting to protect you and if I think care providers aren't doing enough, they won't hear the end of it. It's not just me, your Daddy is no pushover either and with both of us together at every appointment.. well, I'm sure you can guess. :)
Friday, August 24, 2012
8-24-12
6 weeks today. Which gives me 6 weeks to have a plan in place for a cerclage. I really can't help but question the timing of this, despite how grateful we are, the last thing we want is to lose this little one too. My poor husband is blaming himself for not making more money, all I can do is give him a big hug. He's been so amazing and strong through everything. Not many men would agree to the things he agreed to, all to have another child. It's in no way his fault. I do blame myself though, this is my piece of sh*t cervix I'm stuck with and we're in the middle of "I don't want to get sued" healthcare. No insurance is perfect and it's all a headache to deal with in it's own way.
I wish I could understand what we're supposed to learn from this. We had a plan in place that we felt would be our best option against IC, so why change it? Would I have met an untimely demise flying to NJ? Lost my life during surgery? Lost my fertility? What was so wrong about seeing a doctor that actually cared and wanted to see us have a healthy, full term child? There really isn't any support here, my concerns constantly get brushed off just like they did before and that turned out horribly. Everyone insists I'll be fine with a standard TVC, on the basis it's works for most women. I couldn't be happier those who go on to have thier healthy babies with the aid of a TVC. I wish it could ease the feelings of dread inside of me but it doesn't. Every red flag and alarm bell goes off every time a TVC is brought up for the plan of care for me. It leaves me feeling helpless that no one believes me and refuses to take my feelings seriously. This baby deserves so much better than that, I hope something... anything comes along and will help get our baby to term, I would settle for even just short of term, just as long as he or she doesn't endure unnecessary suffering.
I wish I could understand what we're supposed to learn from this. We had a plan in place that we felt would be our best option against IC, so why change it? Would I have met an untimely demise flying to NJ? Lost my life during surgery? Lost my fertility? What was so wrong about seeing a doctor that actually cared and wanted to see us have a healthy, full term child? There really isn't any support here, my concerns constantly get brushed off just like they did before and that turned out horribly. Everyone insists I'll be fine with a standard TVC, on the basis it's works for most women. I couldn't be happier those who go on to have thier healthy babies with the aid of a TVC. I wish it could ease the feelings of dread inside of me but it doesn't. Every red flag and alarm bell goes off every time a TVC is brought up for the plan of care for me. It leaves me feeling helpless that no one believes me and refuses to take my feelings seriously. This baby deserves so much better than that, I hope something... anything comes along and will help get our baby to term, I would settle for even just short of term, just as long as he or she doesn't endure unnecessary suffering.
Saturday, August 18, 2012
8-18-12
So the surprising turn?? A rainbow baby coming in the Spring of 2013. =) Just as my husband and I decided to put ttc on hold and wait until next year, not to mention the odds we were given for getting pregnant on our own.
Well, unexpected but we are truly blessed and determined to get the best possible care. Hcg levels have been rising nicely so far and my OB is hoping to confirm baby is growing in the right spot soon, after an ectopic scare. I'm grateful that there is still hope for a TAC, so I'm not counting that out. Although if that's a no go, a TVCIC is a another great cerclage type and, according to my would have been TAC surgeon, the doctor in my area has a very good success rate with them. Fingers crossed insurance wont pose a problem and I'll just need a referral.
Thinking of you, my little sweetheart above, we miss you so much but we know you are looking down on all of us right now. I love you.
Well, unexpected but we are truly blessed and determined to get the best possible care. Hcg levels have been rising nicely so far and my OB is hoping to confirm baby is growing in the right spot soon, after an ectopic scare. I'm grateful that there is still hope for a TAC, so I'm not counting that out. Although if that's a no go, a TVCIC is a another great cerclage type and, according to my would have been TAC surgeon, the doctor in my area has a very good success rate with them. Fingers crossed insurance wont pose a problem and I'll just need a referral.
Thinking of you, my little sweetheart above, we miss you so much but we know you are looking down on all of us right now. I love you.
Subscribe to:
Posts (Atom)
